2010
03.03

Sarcoidosis is a rare autoimmune disease of unknown origin that effects approximately 1 to 10 people out 100, 000 people. Sometimes a person with sarcoidosis doesn’t exhibit any signs or symptoms and is diagnosed by accident during routine medical visits or tests for something else and may never have a problem as a result. Another person may have few symptoms and control it through medication and live quite normally, while yet another may be disabled by it. Sarcoidosis can be a very mysterious thing.

I plan on talking about what exactly sarcoidosis is, and all that goes with it, like medications to dealing with doctors to finding ways to cope. In a nutshell, I want to inform a person about this disease, especially those who are newly diagnosed or know someone who has sarcoidosis and maybe take some of the fear and sting out of this.

It is possible to live and deal with sarcoidosis. This disease is treatable. No matter how bad or scary it seems.

I was diagnosed in January 1996 with sarcoidosis. I have good days and bad ones. Sometimes it is a bumpy ride but it is one I am glad that I have had. I was always healthy until this. I didn’t have a clue as to what it would like to not be a healthy person. It has given me a new perspective on things and taught me a little more tolerance. I think it has made me a stronger person. I consider sarcoidosis my best friend. I know that probably has means I need a padded room and one of those cute little white coats with the arms that fasten behind the back. But it is with me 24 hours a day, 7 days a week. I bathe, eat, sleep, and do my living with it. Under those circumstances it is better to treat like a friend. Anything just doesn’t make sense.

My next few articles will deal with defining sarcoidosis; all the terms that goes with it, and experiences of dealing. I am also planning on discussing things like medical testing and procedures, insurance, finding a good doctor. There are all kinds of resources available if we just look.

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